What next?

(To be clear I am not looking for any kind of diagnosis, what I’m looking for is “I had this symptom that you have and I got this done”)

My doctor is stumped but bc she’s very sympathetic and understanding to my situation she’s told me that if if can think of any testing or panels and whatnot that I want done, she’ll set it up and will do it, so help me out here!

Here’s my symptoms, •constant blood in urine,

•unable to tell when I need to pee unless there’s intense pressure,

•pain at the end of urination

•pain after peeing

•inability to fully void bladder

• constant chest and rib pain

•pain when taking a deep breath in.

•abdominal discomfort

•stabbing urethral pain

•stabbing vaginal pain

•cramping and bloating constantly

•gas

•clear vomiting and thick saliva

• lack of appetite and energy

•insomnia

•constant phlegm and green snot, sometimes coughing up the phlegm.

•earaches and stabbing facial pain

• breakthrough bleeding and hormone issues. (To the paint I had to be put on the depo shot and the pill bc I bleed through the pill even in a 3x dose)

•hair-loss and skin issues (prob the hormones)

•constant skin rashes and irritation

•allergic to my own sweat

• random anaphylactic shock even when not in contact with allergens.

• random and constant bruising even when non anemic

•inability to absorb nutrients via supplements so they have to be done via infusions.

•temperature fluctuations

• low immune system

•low white blood cell count.

• muscle cramps and sore muscles

• random rashes and unexplained marks.

•throwing up in my mouth constantly

• bodily hypersensitivity, (wearing underwear and bras causes me physical unbearable pain, it’s not due to tightness if they were any looser they’d literally fall off me)

• everything on my body clicks and pops

•small difficult veins (I don’t really consider this a medical issue just something I’ve noticed)

•stomach pain that makes me still full hungry even when I’m full and have no desire to eat (it just feels the exact same as hunger pains) (I’ve had to fast often enough to know what those feel like)

•headaches

There’s prob more but I have so many things it’s hard to remember them all.

Here’s what I’ve had done,

•colonoscopy and endoscopy I’m prob due for another tho,

•Cytoscapy (inconclusive)

• tons of blood and urine tests

• all sorts of scans and x rays

• uroflo

• fecal tests

• clotting disorder testing

• (I’m having genetic cancer testing done in December)

•I wanted a full genetic panel but the dr found it hard to get.

•I wanted a drug reaction panel, (I’ve had a lot of bad reactions to meds and some don’t work on me so I feel like it’s better to know ahead of time) (but that’s the same story as the genetic panel.)

•basic cardiac testing but the doctor want more through testing done.

• pull camera swallow.

Any suggestions on what to get done?