How to get surgeon to help me after lap?
Hi, I had my first* (as in first competent) endometriosis excision 3 weeks ago with a highly skilled surgeon. My appendix was also removed. My surgeon told me she felt confident that this could help my chronic pain I’ve had for the last 8 months as I only had superficial endometriosis and she was able to get everything out.
However, ever since surgery I’ve been having horrible stomach cramps all throughout the day, and especially after I eat. It’s different than my endo pain, it’s like I can feel everything moving through me as it stabs and cramps everywhere in my abdomen. I’m also still having pelvic pain, go figure.
I’ve reached out to my surgeon’s team multiple times about this new issue, but they won’t do anything to help. I sent them a message, brought it up during my post-op appointment, and had a second meeting with my surgeon’s fellow. First they told me it was normal, and now they’re saying because it’s a GI issue, it’s “out of their scope”. They sent a referral to the GI department, but today I learned that my appointment was denied by the department, and I was never informed. What the fuck am I supposed to do? How am I supposed to advocate for myself when they can say “we refuse to help you” and that’s that?
Has anyone else had GI pain like this after surgery? At first I was told it’s is normal because of all the damage and inflammation… but I feel like I’ve never heard anyone mention this. I’ve been taking dicyclomine, but it hasn’t helped yet.
Is it really normal to be in pain for, as they predict, 6-9 weeks after surgery? Because to me it seems like I’m worse, not better! I need this surgery to work because if it doesn’t there is literally nothing left lol. Sorry if I’m saying stuff everyone already knows. I hope you all are having better luck than I am right now. Thank you 🤍