Need help regarding my blind baby and minimal resources
Hello everyone. I’m a FTM to a 10 month old baby. We have not done any genetic testing but have a diagnosis of LCA(lebers) based on clinical symptoms, i.e eye pressing, not following anything, and light gazing. It was a sudden and shocking diagnosis, especially since no one from both sides of family ever has had a similar case. I’m from a small town in south asia and we do not have services like Early intervention and therapies here. There are educational programs for blind children but they are for school age group, almost nothing for a blind infant. I have to figure it out myself. I was wondering If i can connect with other fellow parents and get an idea of how did they encourage their baby to reach their milestones. My baby does not lack physical strength i.e can sit unassisted and rolls both ways but is yet to crawl or pull up to stand. In short she is not mobile yet and its stressing me now since I want her to understand that she has a world around her that she can explore but shes yet to grasp this concept. Because she almost sees nothing except lights, its hard to follow the exercises given on YT because everything involves enticing your baby with some visual incentive and encouraging them to move. I feel at loss and would greatly appreciate any suggestions. TIA