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Forward-Sympathy411

2025-01-31 14:09:27

Need help regarding my blind baby and minimal resources

Forward-Sympathy411

2025-01-29 14:48:42

Sensitive: How to love my blind baby

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Man is born without wings to fly, but has already explored infinite spaces. Your little son was born without sight, but he brought with him the same inheritance accumulated through the use of his ancestors' eyes. He has within him natural elements to understand the world like you, as his education is better guided. I was born blind. My mother, who is a primary school teacher, soon began to stimulate me with rattles, noises and tactile sensations. You can stimulate your child with baby songs, things that make noise and, mainly, by giving him tactile sensations. By gently tickling him with a feather, for example; by taking his little hands to things that will not hurt him, such as soft, small bears. Courage, and get to work, with love and devotion.

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Thank you for writing this lovely comment

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You can entice your baby with sounds, smells, textures, and your touch! Are there toys she likes? Blankets? Can you introduce her to like making baby music like with a maraca type thing that makes noise when you shake it? She's very young so I don't think you should be stressed.

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I’m not sure if she likes any particular toy but we do entice her with all kinds of toys and sounds all the time. She does reach for us or the toys if they are under her hands reach while shes sitting, but if I put things little out of her reach, she doesn’t bother to move at all. She is fully capable of moving because shes strong and active otherwise and can roll and sit great and even stands holding on to us so its not about muscular strength here. I read conflicting information online, some say that blindness should not delay any milestones if you provide them with enough help and at some places its said that expect some delay. I just don’t want my daughter to be behind because I didnt put enough effort and thats why i want to reach out to other parents with similar experiences.

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Hey! I also have a blind/severely visually impaired child. She was diagnosed at 8 months and is now almost 3. I also had little response from her in the early days, and she had really inward turning eyes which signalled me to get her tested. It’s honestly amazing how she gets around in the world, it’s estimated she can see about 10 percent of what other children can see at her age but you would hardly know it. It’s really incredible to see she has self managed mobility with her own strategies. It is expected she will start to lose the rest of her vision between 5-10 years old so I am trying to give her all the support I can at this stage, for example she’s about to learn how to walk with a cane and will start to learn braille in the next year. We have a few government funded organisations that specialise in supporting blind children which support us and she will have them through her school life. I know it’s scary and I’ve definitely had my moments fearing for her future but all she has done is amaze me, she’s truly unique.

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Thank you so much for your reply. Can I DM you?

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I am blind. As a blind individual I went through my stages of grief, got to acceptance, and adapted to my new life. I am now sitting here in my rocking chair rocking my daughter. You will also go through the stages of grief but you will get there. Medical advancements are getting really close. And even if that’s not an option, she will Adapt and find her way in life with your guidance. There are a lot of resources out there.

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Thank you so much for your comment. My daughter is already so different from her peers in her milestones, mannerisms, and activities that I stay up at nights wondering what kind of life will she have when she is socially aware and has to step in the real world. But I’ll remind myself of your comment and hope my daughter will also have a fulfilling and rich life. about treatment part, she is severe retinal dystrophy and there’s no cure unfortunately.

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